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Assessment of Pain in People With Thalassemia Who Are Treated With Regular Blood Transfusions
Not Recruiting
Trial ID: NCT00872833
Purpose
Thalassemia is an inherited blood disorder that can result in mild to severe anemia. Regular
blood transfusions, which refresh the healthy red blood cell supply, are one treatment for
thalassemia. People with thalassemia often experience pain, but the exact source of pain
remains unknown. This study will examine how pain varies during the blood transfusion cycle
in people with thalassemia who are treated with regular blood transfusions.
Official Title
Assessment of Pain in Transfusion Dependent Patients With Thalassemia During Transfusion Cycles
Stanford Investigator(s)
Maurice L. Druzin
Professor of Obstetrics and Gynecology (Maternal Fetal Medicine) and, by courtesy, of Pediatrics
Eligibility
Inclusion Criteria:
- Participating in the Thalassemia Clinical Research Network Assessment of Pain study
- Has a transfusion dependence of at least eight transfusions per year
- Diagnosis of beta thalassemia or E-beta-thalassemia
- Experiences at least "mild" pain in the 1 month before study entry, as measured by the
response to the Brief Pain Inventory (BPI) question #6 from the Assessment of Pain
study
Exclusion Criteria:
- Unwillingness or inability to complete the Brief Pain Inventory Short Form (BPI-SF) on
a daily basis
Not Recruiting
Contact Information
Stanford University
School of Medicine
300 Pasteur Drive
Stanford,
CA
94305