Trial Search Results
Assessment of Pain in People With Thalassemia Who Are Treated With Regular Blood Transfusions
Thalassemia is an inherited blood disorder that can result in mild to severe anemia. Regular blood transfusions, which refresh the healthy red blood cell supply, are one treatment for thalassemia. People with thalassemia often experience pain, but the exact source of pain remains unknown. This study will examine how pain varies during the blood transfusion cycle in people with thalassemia who are treated with regular blood transfusions.
Stanford is currently not accepting patients for this trial.
Collaborator: National Heart, Lung, and Blood Institute (NHLBI)
- Participating in the Thalassemia Clinical Research Network Assessment of Pain study
- Has a transfusion dependence of at least eight transfusions per year
- Diagnosis of beta thalassemia or E-beta-thalassemia
- Experiences at least "mild" pain in the 1 month before study entry, as measured by the
response to the Brief Pain Inventory (BPI) question #6 from the Assessment of Pain
- Unwillingness or inability to complete the Brief Pain Inventory Short Form (BPI-SF) on
a daily basis
Ages Eligible for Study
18 Years - N/A
Genders Eligible for Study