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Pulmonary Fibrosis Foundation Patient Registry
Recruiting
Trial ID: NCT02758808
Purpose
The Pulmonary Fibrosis Foundation Patient Registry will collect data on at least 2,000
patients with interstitial lung disease (ILD) at approximately 40 clinical sites in the US.
The Registry is targeting enrollment of approximately 60% of the 2,000 ILD participants to
have idiopathic pulmonary fibrosis (IPF). The aim of the Registry is to create a cohort of
well-characterized patients with interstitial lung disease (ILD) for participation in
retrospective and prospective research
Official Title
Pulmonary Fibrosis Foundation Patient Registry
Stanford Investigator(s)
Joshua Mooney
Clinical Assistant Professor, Medicine - Pulmonary, Allergy & Critical Care Medicine
Rishi Raj
Clinical Professor, Medicine - Pulmonary, Allergy & Critical Care Medicine
Eligibility
Inclusion Criteria:
1. 18 years old or older
2. Understand and sign the informed consent document
3. ILD Diagnosis must be made / confirmed at a participating Registry center.
1. The diagnostic evaluation must include, at a minimum, a medical history, physical
examination, pulmonary function testing and a computerized tomography (CT) scan
of the chest.
2. If patients exhibit another pulmonary disease (such as emphysema or asthma), the
primary disease must be ILD.
4. Anticipated additional follow up at the Registry center within one year.
Exclusion Criteria:
1. Diagnosed with:
1. Sarcoid
2. Lymphangioleiomyomatosis (LAM)
3. Pulmonary alveolar proteinosis (PAP)
4. Cystic fibrosis (CF)
5. Amyloidosis
Recruiting
Contact Information
Stanford University
School of Medicine
300 Pasteur Drive
Stanford,
CA
94305