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GoalKeeper: Intelligent Information Sharing for Children With Medical Complexity
Trial ID: NCT03620071
This proposal addresses the major challenge of improving health outcomes for children with cancer and other complex conditions, for whom the effectiveness of outpatient care depends on care coordination across a diverse group of caregivers that includes parents, community support organizations and pediatric care providers. The investigators have developed GoalKeeper, a prototype system for supporting care coordination across multiple care providers. The primary aim of the clinical trial is to assess the potential for this new system, GoalKeeper, to improve meaningful use of goal-centered care plans in the care of children with cancer and other complex chronic conditions.
Intelligent Information Sharing: Advancing Teamwork in Complex Care
- Parent-child dyads and their medical provider
- Parent and provider age 18 years or older
- Parent English- or Spanish-speaking
- Child > age 12 months and <12 years old
- Parent with known mental illness or neurocognitive impairment.
other: Standard Care
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