ID Of Prognostic Factors In Mycosis Fungoides/Sezary Syndrome


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Trial ID: NCT02848274


The purpose of the study is to develop a prognostic index model for the rare disease of mycosis fungoides and sezary syndrome. This will be done by collecting standardized clinical data at various institutions. The investigators hope this will enable the identification of low- and high-risk groups for survival in order to improve patient care and outcome.

Official Title

Prospective Multicenter International Observational Study for Determination of a Cutaneous Lymphoma International Prognostic Index Model and Impact of Major Therapies in Patients With Advanced Mycosis Fungoides and Sézary Syndrome

Stanford Investigator(s)

Youn H Kim, MD
Youn H Kim, MD

The Joanne and Peter Haas, Jr., Professor for Cutaneous Lymphoma Research and Professor, by courtesy, of Medicine (Oncology)


Inclusion Criteria

   - Diagnosis of advanced stage MF or SS (Stages IIB - IVB) within 6 months of
   presentation to the participating center

   - Patients that are expected to have care administered at the participating center or
   jointly with referring physician(s) where follow-up data would be available

Exclusion Criteria

   - Patients diagnosed with early stage MF/SS (Stages IA-IIA) before progressing to
   advanced stage

   - Patients diagnosed with advanced MF/SS more than 6 months prior to initial
   presentation to the participating center

   - Exclude one-time consultation type of new patients.


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Contact Information

Stanford University
School of Medicine
300 Pasteur Drive
Stanford, CA 94305
Tatiana Neal

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