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Long Term Effects On Recipients of Hematopoietic Stem Cell Transplantation
Trial ID: NCT01629017
This project allows for the systematic collection and analysis of long-term follow-up clinical parameters in children who have received a stem cell transplant. The data collected will assist in determining appropriate intervention and treatment plans for patients enrolled on this study. In addition, future patients may benefit by having the ability to anticipate problems and develop methods of prevention or early intervention.
Longitudinal Evaluation of Recipients of Hematopoietic Stem Cell Transplantation (HSCT)
- Participant is scheduled to receive OR has received a hematopoietic stem cell
transplant (HSCT) for any condition.
- Participant may have had a HSCT in another institution than Lucile Packard Children's
Hospital (LPCH) yet has transferred follow-up long-term care to our institution and is
being seen through the late-effects clinic from the Pediatric HSCT program.
- Participant AND/OR parent/legally authorized representative is able to provide written
informed consent and assent (as applicable) for participation.
- Participant has relapsed from a malignant diagnosis post HSCT and is not being
worked-up for a new HSCT.
- Participant or patient's authorized guardian is unable to provide consent and assent