Single-Session "Empowered Relief" Class for Marfan Syndrome and Related Conditions

Not Recruiting

Trial ID: NCT05980104

Purpose

The purpose of this study is to conduct a feasibility clinical trial by implementing a 1-session pain relief skills intervention (Empowered Relief; two hours total treatment time) for individuals with Marfan syndrome, Vascular Ehlers-Danlos Syndrome, Loeys-Dietz Syndrome, and related conditions.

Official Title

Virtual Single-Session "Empowered Relief" Class for Individuals With Marfan Syndrome and Related Conditions

Stanford Investigator(s)

Beth Darnall
Beth Darnall

Professor of Anesthesiology, Perioperative and Pain Medicine (Adult Pain) and, by courtesy, of Psychiatry and Behavioral Sciences (General Psychiatry & Psychology (Adult))

Eligibility


Inclusion Criteria:

   - Male and females 18 years of age or older

   - Marfan Syndrome, Vascular Ehlers-Danlos Syndrome, Loeys-Dietz Syndrome or related
   connective tissue disease and chronic pain

   - English fluency

   - Ability to adhere to and complete study protocols

Exclusion Criteria:

   - Cognitive impairment, non-English speaking, or psychological factors that would
   preclude comprehension of material and/or full participation in the study.

Intervention(s):

behavioral: Empowered Relief

Not Recruiting

Contact Information

Stanford University
School of Medicine
300 Pasteur Drive
Stanford, CA 94305
Beth Darnall, PhD
650-723-2040